What are my days like?
After I pull myself out of bed, I have been trying to sit outside in the sun every morning. I can only do it for about 15 minutes. After that, I sit on the couch for a few hours and do things on my iPad, play games, eat breakfast, etc. Then I am back in bed or lying down somewhere else pretty much for the rest of the day. Sometimes I will force myself to sit at the computer and do some thing or do a single chore around the house. I do that so that I feel like at least I accomplished SOMEthing in the day. But even a small task will knock me out, and I need to get in bed right away again.
Every afternoon, I get extremely heavy, fatigued, dizzy and almost breathless.
The tremors in my hands are worse than ever. I am unable to write legibly.
Woke up in tears today because it hurt so much all night long
I am a little out of breath and nauseated because I am in so much pain.
Overall, pain level is eight.